Privacy Notice

GlobalMinds is a research programme run by Akrivia Health, which is the trading name of Cristal Health Ltd (Company Number 11892096). Akrivia Health is the data controller, which means we decide what data is used and how for the purposes of the GlobalMinds programme. We are registered with the Information Commissioner’s Office (ICO), ZA522852. 

This information tells you about how we use your personal data for the purpose of the programme. Personal data is data that relates to you, and which can be used to identify you, either by itself or by combining it with other data. When we talk about ‘we’ or ‘us’ we’re talking about Akrivia Health. If you want more information on how we use data, we have an in-depth privacy notice for GlobalMinds. 

If you have any questions at all, please contact DPO@akriviahealth.com.  

Research studies use data for different reasons, we have summarised them below, you can find out even more information in our in-depth privacy notice for GlobalMinds.

Data protection law requires organisations to have a ‘lawful basis’ for using personal data. 

We rely on having a legitimate interest in using the data for research purposes. Legitimate interest allows an organisation to use your personal data if they have a good reason to do so, as long as it doesn’t unfairly impact your rights and freedoms. Our legitimate interest is that the research will contribute to development of new treatments for depression, bi-polar disorder, schizophrenia and dementias.  

We rely on your consent to contact you for other purposes (including updates about Akrivia Health, and taking part in out public & patient involvement network). 

We rely on your consent to use information to track your use of the GlobalMinds Hub. This helps us understand how easy the Hub is to use. 

We keep data for only as long as we need it.  

• Programme data will be retained for 5 years after the close of the programme. 

• Contact preference information is retained indefinitely, so that we know whether you have consented to be contacted or not. 

• If you make an enquiry about the programme we will keep the data for 6 months after our last contact with you. 

Akrivia Health uses suppliers to process data on our behalf, these include: 

• Secure cloud storage providers, 

• NHS Trusts (if you enrol on-site), 

• Remote phlebotomy services (trained professionals who will visit participant’s homes to take blood samples), 

• Sample kit ordering system (if you enrol remotely), 

• Sample storage providers, 

• DNA sequencing provider. 

Data protection law gives you with rights, sometimes call information rights. These are: 

• The right to be informed – this notice provides information about the programme. We also have an in-depth privacy notice here Global Minds Comprehensive Privacy Notice - Akrivia Health. 

• The right to access data – you have the right to request access to data that we hold relating to you. 

• The right to rectification – you can ask us to correct inaccurate data. 

• The right to object and restrict – you can ask us to stop using data relating to you. 

• The right to erasure – you can ask us to delete data relating to you. 

• The right to complain to the Information Commissioner’s Office (ICO), who regulate data protection in the UK. Telephone: 0303 123 1113. Web: https://ico.org.uk/global/contact-us/contact-us-public/  

As part of enrolment we use automated decision-making to decide whether you are eligible for the GlobalMinds programme. This process uses data you have provided (NHS number, date of birth, and diagnosis). The decision-making replicates what a human would do. We do not think that this processing has a legal or similarly significant effect on you. 

Should you have any queries about the how your data is used, including a complaint for our data protection officer, then please email DPO@akriviahealth.com, or write to us at: